Skip to main content

Croeso i Gymru



Life changing decision.

2005 was not a good year as they go. In fact it all started in November 2004, the 5th to be exact when Dadi Skilts (DS) was rushed to hospital. He had been ill for most of the preceding year and thought he had discovered a brilliant new diet where you drank litres of water and lost loads of weight (although you had zero energy and slept most of your life away). I assured him women across the world would have sussed that one, millennia ago. I don’t know why, but I encouraged him to get a diabetes test as the local pharmacy were offering free ones.

After copious nagging and most likely just to shut me up, he went; but unfortunately it appeared their test kit was faulty because it gave a stupidly high reading and it was suggested he should visit his GP for a more reliable test.

More nagging and an eventual Doctors visit on that fateful day once again showed a reading so stupidly high that the Dr thought his machine was also broken until DS commented that was exactly what the Pharmacist had said. Dr immediately called an ambulance and sent DS straight to hospital, do not pass go, do not stop to collect your belongings. I had a call from the surgery instructing me to pack a bag for him and meet him at the ward.

After several days in hospital to stabilise his blood numbers and a place in Diabetic history as having the highest numbers ever seen by the GP (36). My hubby returned home a Type 1, Adult onset, Diabetic and had to over-come his fear of needles PDQ.

Roll on January 2005 when he was un-ceremoniously made redundant from his job and spent the next 5 months unemployed and struggling to cope with ‘Shooting-up’ (as he likes to say in public) 4 times a day. I could see depression creeping up on him like Stephen King’s ‘The Mist’. The redundancy money disappeared quicker than a fart in a fan factory and we ended up having to borrow a LOT to survive.  It put a HUGE strain on our marriage as I was obviously not working and........  

Ryan was having issues settling into Playgroup, was diagnosed as asthmatic in January 2005 and began taking pumps. I also began to believe that certain E numbers were triggering behavioural issues in him. We also began having problems on the once nice estate that we lived on, drugs and crime were on the increase and we didn’t much enjoy the, although free, races on the streets, burnt out stolen cars and regular fly-overs from the Police Helicopters. Things were getting so bad, the local council dug up the park opposite our house and created large mounds in an attempt to stop the racing and car dumping. It didn’t work, it just became an off road track instead.

We didn't want our children growing up in this environment and decided it was time for change, a fresh start. We chose to move to the beautiful rural Welsh Amman Valley for a piece of the good life and that’s where the fun really began.


Croeso i Gymru

The boys started in the local Welsh language primary school. We were offered lots of support and help to settle the boys into an alien environment with a totally unfamiliar foreign language, that Ryan still to this day refers to as gobbledygook. Almost immediately my eldest son simply thrived once again although he did suffer a little bullying for ‘Being English’. Ryan however was classed a ‘Busy child’ (recognise the term?). Can’t sit still, He’s an outdoors child, Brain seems to be very bright and active, but going a a rather faster pace than everyone else; are all terms that have been used to describe Ryan and little did we know the welcome that truly lay ahead as we battled for Ryan's increasing additional needs. 

Comments

Popular Posts

Missing Education due to Illness

The Importance of Attendance If you read any news articles on education, correspondence from your child’s school, or are simply clued up on parenting then you will know the importance of school attendance. Schools place a great deal of focus on targets and will often offer incentives and competitions to encourage and increase attendance figures, but what if your child has a serious illness. What happens if they really are not well enough to attend school. What happens then? Attendance targets at Ryan's school are currently set at 95% attendance for the school year. Therefore realistically your child can only miss 10 school days due to illness. Medical appointments such as GP or Dentist do not count, but you are encouraged to make these appointments outside of the school day where feasibly possible. If your child consistently misses school, even if it is only one day a week, that equates to 39 days over the school year. Even missing one day in a week results in pressure on the ...

Questions to ask after Cancer diagnosis

Cancer Sucks I have shared with you Ryan's lymphoma journey where we have talked about the ups, the downs, the protocols for drugs, the side effects, but I realised recently I have never shared the questions. This post is all about what to ask when you receive a diagnosis of cancer. Receiving a cancer diagnosis is never ever going to be seen as good news. It can never be dressed up or made pretty. It is devastating, it is gut-wrenching, it is life-changing. There is so much information to process you will not think of the questions you need to ask or you will have hundreds of questions you want to ask all at once. These are just some of the questions you can ask once you have processed the news, in order to gain a better understanding of your fight ahead. General Information What type of cancer do I have? Where is it located? What are the risk factors for this disease? Is this type of cancer caused by genetic factors? Are other members of my family at risk? What lifestyle c...

Chemotherapy Cycle 5

What is Normal? With this being our penultimate cycle of chemotherapy I have had several family and friends comment to me “oh I bet you can't wait to get back to normal”. This has really thrown and upset me because it seems to come across that they have failed to comprehend the fact that we have 2-3 years of maintenance ahead and at least two more general anaesthetic surgeries. Not to mention physiotherapy as it is expected Ryan will take 12+ months to heal from the effects of being poisoned from the inside out. Normal is long way off yet. While everyone else appears to all be getting excited that Ryan is coming to an end of his chemotherapy protocol treatment, Ryan himself is becoming more and more tired with the cumulative effect of the onslaught of the chemotherapy drugs and is spending long periods of time in hospital after each cycle with infections due to his impaired immune system now as a result. Ryan is far from excited. Ryan is exhausted. We still have one more cycle t...

Worrying About the Future

  Worrying About the Future. Ryan said to me recently. "Childhood gave me Autism. My teens gave me cancer. What will adulthood bring?" Big worries for someone so young. So much pressure and conditioning are placed upon us about the importance of education and the set path that the majority of us will take through the system to university and/or the job market. What happens if you do not follow that path or miss so much education that the path is no longer open to you. How do you plan for the future? What options are there available to you? Ryan was excluded from his primary school in year 2 and I home schooled him for a year while we worked with the Educational Psychologist to find a placement that would suit his complex needs at the time. Due to his speech, language and communication difficulties the decision was made to withdraw him from Welsh-medium education and focus on English only which meant our choices were limited in the area of Wales that we call home. We...

Peritonitis

Emergency Surgery On the morning of 25 October 2016 Ryan was complaining that his PEG feeding tube was unbearably painful. He was due for a review anyway that day at Velindre Cancer Centre and a PEG specialist nurse came for to look at Ryan. She said the site was a bit weepy and raw, she thinks he possibly caught or pulled it in the night. She is confident that it is fine and she also gave it another good clean.  A week on and we are back to square one. The district nurse came out on Monday 31 October 2016 to advance (turn) the PEG tube as is needed each week after the first month. The nurse was unable to move the disc and caused Ryan an incredible amount of pain. We ended up having to go to the Teenage Cancer Trust ward in Cardiff, where two gastro nurses met us and spent the best part of an hour, torturing Ryan while they 'forced' the PEG to move, which they eventually did. Or so they thought.  The following week, 7 November 2016, the district Nurse came again to the ...