Skip to main content

A lonely parakeet




I recently read a very interesting article in my local paper the South Wales Evening Post with the following equally interesting headline:


Sad story of lonely parakeet living in Swansea's Singleton Park - where none of the other birds will make friends with it.



I was immediately drawn to this story as it instantly reminded me of my Ryan. No, I don't think he looks like a parrot, as gorgeous looking like both of them are, but I do understand how isolated he feels and up till recently how lonely he has been for most of his life. 

Ryan's autism has caused him to be excluded from the 'flock'. He has been the 'odd one out', desperately trying to fit in and make friends but never quite managing it. Certainly not through primary school. 

Iolo's description is so nice to hear. Smart birds, really smart. Just like Ryan, but even with an exceptional IQ for his age the ability to convert that intelligence to be able to make social inclusion work for him proves so incredibly difficult. Showing just how complex the unspoken rules of society are. The non-verbal rules the majority of us simply take for granted. 

Ryan settled well into secondary education in a good school where he is was well supported and he did manage to secure himself a small group of friends that accepted him for who he is where he is learning the social rules and complex nature of maintaining friendships. However, this was to be snatched away from him in the cruellest of circumstances when he was diagnosed with cancer aged 14. 




He has adapted once again to the isolation that cancer brings as well as autism. He is often on his PC outside of school and hospital appointment chatting with his friends and they play online games together. As much as we complain about technology and the isolation they in themselves can cause to children, they are in fact a lifeline to Ryan's ability to integrate socially. 



Read more: http://www.southwales-eveningpost.co.uk/Iolo-Williams-Singleton-Park-Parakeet/story-25830455-detail/story.html#ixzz3SN5Z7z3o 

Comments

  1. There is light at the end of the tunnel. Well done DSOR

    ReplyDelete

Post a Comment

Thanks for your comment. We appreciate having you along for the ride.

Popular Posts

Missing Education due to Illness

The Importance of Attendance If you read any news articles on education, correspondence from your child’s school, or are simply clued up on parenting then you will know the importance of school attendance. Schools place a great deal of focus on targets and will often offer incentives and competitions to encourage and increase attendance figures, but what if your child has a serious illness. What happens if they really are not well enough to attend school. What happens then? Attendance targets at Ryan's school are currently set at 95% attendance for the school year. Therefore realistically your child can only miss 10 school days due to illness. Medical appointments such as GP or Dentist do not count, but you are encouraged to make these appointments outside of the school day where feasibly possible. If your child consistently misses school, even if it is only one day a week, that equates to 39 days over the school year. Even missing one day in a week results in pressure on the

Chemotherapy Cycle 5

What is Normal? With this being our penultimate cycle of chemotherapy I have had several family and friends comment to me “oh I bet you can't wait to get back to normal”. This has really thrown and upset me because it seems to come across that they have failed to comprehend the fact that we have 2-3 years of maintenance ahead and at least two more general anaesthetic surgeries. Not to mention physiotherapy as it is expected Ryan will take 12+ months to heal from the effects of being poisoned from the inside out. Normal is long way off yet. While everyone else appears to all be getting excited that Ryan is coming to an end of his chemotherapy protocol treatment, Ryan himself is becoming more and more tired with the cumulative effect of the onslaught of the chemotherapy drugs and is spending long periods of time in hospital after each cycle with infections due to his impaired immune system now as a result. Ryan is far from excited. Ryan is exhausted. We still have one more cycle t

Questions to ask after Cancer diagnosis

Cancer Sucks I have shared with you Ryan's lymphoma journey where we have talked about the ups, the downs, the protocols for drugs, the side effects, but I realised recently I have never shared the questions. This post is all about what to ask when you receive a diagnosis of cancer. Receiving a cancer diagnosis is never ever going to be seen as good news. It can never be dressed up or made pretty. It is devastating, it is gut-wrenching, it is life-changing. There is so much information to process you will not think of the questions you need to ask or you will have hundreds of questions you want to ask all at once. These are just some of the questions you can ask once you have processed the news, in order to gain a better understanding of your fight ahead. General Information What type of cancer do I have? Where is it located? What are the risk factors for this disease? Is this type of cancer caused by genetic factors? Are other members of my family at risk? What lifestyle c

Worrying About the Future

  Worrying About the Future. Ryan said to me recently. "Childhood gave me Autism. My teens gave me cancer. What will adulthood bring?" Big worries for someone so young. So much pressure and conditioning are placed upon us about the importance of education and the set path that the majority of us will take through the system to university and/or the job market. What happens if you do not follow that path or miss so much education that the path is no longer open to you. How do you plan for the future? What options are there available to you? Ryan was excluded from his primary school in year 2 and I home schooled him for a year while we worked with the Educational Psychologist to find a placement that would suit his complex needs at the time. Due to his speech, language and communication difficulties the decision was made to withdraw him from Welsh-medium education and focus on English only which meant our choices were limited in the area of Wales that we call home. We

Peritonitis

Emergency Surgery On the morning of 25 October 2016 Ryan was complaining that his PEG feeding tube was unbearably painful. He was due for a review anyway that day at Velindre Cancer Centre and a PEG specialist nurse came for to look at Ryan. She said the site was a bit weepy and raw, she thinks he possibly caught or pulled it in the night. She is confident that it is fine and she also gave it another good clean.  A week on and we are back to square one. The district nurse came out on Monday 31 October 2016 to advance (turn) the PEG tube as is needed each week after the first month. The nurse was unable to move the disc and caused Ryan an incredible amount of pain. We ended up having to go to the Teenage Cancer Trust ward in Cardiff, where two gastro nurses met us and spent the best part of an hour, torturing Ryan while they 'forced' the PEG to move, which they eventually did. Or so they thought.  The following week, 7 November 2016, the district Nurse came again to the h